Tribute was written by Kevin W. Williams, Legal Program Director,
Colorado Cross-Disability Coalition Civil Rights Legal Program
“We are one people with one family. We’ll live in the same house . . . and through books, through information, we must find a way to say to people that we must lay down the burden of hate. For hate is too heavy a burden to bear.”* – Rep. John Lewis (All quotations throughout this CCDC Memorial blog are the words of John Lewis himself unless otherwise noted).
This tribute allows John Lewis to speak for himself in the humble yet powerful way only he could.
The disability rights movement owes an enormous debt of gratitude to John Lewis, who died on July 17, 2020. His was indeed a life well-lived. He was our teacher and demonstrated why, in so many ways, “Black Lives Matter!” Congressional representatives on both sides of the aisle referred to him as the “Conscience of the Congress,” and Congress will never be the same without him. His life, his perspective, his commitment stayed with him until the day he died. We need and miss him, especially now, and always will.
In 1961, John Lewis became one of the original 13 Freedom Riders; the group made up of seven black and six white Americans. They were determined to ride from Washington, D.C. to New Orleans in an integrated fashion. Much of this work was attributed to his involvement with the Fellowship of Reconciliation and the Congress of Racial Equality. He and the other Freedom Riders were severely beaten and jailed as they entered the southern states.
“We were determined not to let any act of violence keep us from our goal. We knew our lives could be threatened, but we had made up our minds not to turn back.”*
The disability community took all of its cues from John Lewis when shutting down the Regional Transportation District (RTD) in Denver, Colorado. The Gang of 19 threw themselves out of their wheelchairs and blocked buses overnight on the busiest street in Denver – Colfax Avenue between Broadway and Lincoln. The Gang of 19 was responsible for forcing RTD to be the first transportation system in the country to install wheelchair lifts on its buses. All of the tactics for making this happen can be attributed to the work of John Lewis.
Denied the right to vote, he and the other marchers refused to give up! Even as he led the march (literally — he was at the front of the line) across the bridge, at which point the Alabama State Patrol took a billy club to his head before arresting him. John Lewis, following in the steps of Dr. Martin Luther King, understood and believed in the theory of nonviolent protest. He and those with him demonstrated to this country and the world that those who are willing to risk everything (their bodies, arrest, and even death) without using violence have great power to show the oppressor. Despite repeated attempts to stop the protesters from attaining the same rights enjoyed by all others, they just kept coming back. The message was and, as we have seen with the latest “Black Lives Matter” marches and protests, is powerful. For a while, the nonviolent protest strategies used by John Lewis changed the hearts and minds of many – but not all. And he lived just long enough to see how his efforts and those he orchestrated can still be taken away. Meaning the fight goes on, and we must be prepared to continue.
Indeed, the disability rights movement would not have existed without an understanding of how John Lewis and those of like mind showed this country what injustice looks like and why it can not be tolerated.
“You must be bold, brave, and courageous and find a way… to get in the way.”*
“I want to see young people in America feel the spirit of the 1960s and find a way to get in the way. To find a way to get in trouble. Good trouble, necessary trouble.”*
CCDC also sees the involvement of young people with disabilities as a top priority as we navigate through very uncertain times – viewing the progress we have made and seeing what is left for us to do or do over again.
“I say to people today, you must be prepared if you believe in something. If you believe in something, you have to go for it. As individuals, we may not live to see the end.”*
“Never give up. Never give in. Never become hostile . . . HATE is too big a burden to bear.”*
Lewis earned a bachelor’s degree in religion and philosophy from Fisk University after graduating from The American Baptist Theological Seminary in Nashville, Tennessee. As a student and member of the Nashville Student Movement, he was responsible for organizing sit-ins at segregated lunch counters.
“When you see something that is not right, not fear, not just, you have to speak up. You have to say something; you have to do something.”*
In 1961, Lewis, as one of the Freedom Riders, was beaten by angry mobs, arrested, and at times, taken to jail.
“We were determined not to let any act of violence keep us from our goal. We knew our lives could be threatened, but we had made up our minds not to turn back,” Lewis said towards the end of his life regarding his perseverance following the acts of violence.*
In 1963, he became the chairman of the Student Nonviolent Coordinating Committee (SNCC), the youngest chairman ever to have led the organization that focused solely upon enforcing the civil rights of Black Americans through the use of nonviolent protest. Before that, he was an active participant in the Nashville Student Movement, whose first mission was to desegregate lunch counters, which were ultimately successful.
“Some of us give a little blood for the right to participate in the democratic process.”*
Many reports state that before becoming a United States Representative, John Lewis was arrested and beaten 40 times during non-violent protests and five times after his election. Despite all of the mistreatment, terrible beatings, arrests for engaging in activity already protected by the 13th, 14th, and 15th amendments to the United States Constitution (like voting), Lewis had this to say:
“If you’re not hopeful and optimistic, then you give up. You have to take the long hard look and just believe that if you’re consistent, you will succeed.”*
John Lewis was also the youngest speaker during the March on Washington in 1963. He was asked to tone down his speech for being “too radical.”
Many of the strategies and decision-making that went into the protests organized in large part by John Lewis and SNCC were then used by those in the disability rights movement that created organizations like ADAPT and CCDC. The sit-in protests were continued by John Lewis even when he was a member of the House of Representatives. This purpose and meaning behind this particular method of protesting certainly have not been lost on the disability civil rights community.
John Lewis did go on to become the United States Congressional Representative from the Fifth District of the state of Georgia from January 3, 1987, until his death on July 17, 2020. His legislative accomplishments are too many to list, as well as his achievements before becoming a member of Congress.
“If someone had told me in 1963 that one day I would be in Congress, I would’ve said, ‘you’re crazy. You don’t know what you’re talking about.’”*
Not only did John Lewis become a Congressman for the Fifth District of Georgia, but he also served 16 terms in that position. He eventually became the Chair of the Subcommittee on Oversight for the House of Representatives Committee and Ways in Means, the leader of the Congressional Black Caucus, and the senior chief deputy whip in the Democratic caucus.
In these roles, Representative Lewis accomplished a great deal for not only the Black Community but for all people — the human community.
The disability community and everyone who works for the social justice of all people and recognize as John Lewis did —
“[We] really believe that all of us, as Americans . . . we all need to be treated like fellow human beings.”*
Unfortunately, the “Conscience of the Congress” is now gone. Fortunately, he survived his pancreatic cancer just long enough to see the creation of the “Black Lives Matter Plaza” and watch those who have been protesting racial injustice and police brutality against Black Americans throughout the country grow to a massive scale.
A champion of justice, a believer in peaceful and nonviolent resistance, a fellow human being standing against the oppression of anyone, and one of the few genuinely decent human beings, John Lewis will be missed. Nevertheless, the young activist individuals who joined the House of Representatives in 2018 are there in no small part due to the legacy of John Lewis. At this critical time in American history, we must all follow Lewis’s words of wisdom and continue our commitment to social justice for all people, including people with disabilities. Rest assured, CCDC will carry on fighting – just as the “Conscience of the Congress” did and expected others to do as well.
Remembering some of the artists, innovators, and thinkers we lost in the past year.
Continue reading “The Lives They Lived: Carrie Ann Lucas from the New York Times Magazine”
View original article: Carrie Ann Lucas Obituary in the New York Times
By Katharine Q. Seelye
Feb. 27, 2019
Carrie Ann Lucas, who championed people, especially parents, with disabilities and won a major lawsuit to make Kmart more accessible, died on Sunday in Loveland, Colo. She was 47.
Her sister, Courtney Lucas, said the cause was complications of septic shock. Continue reading “Carrie Ann Lucas Obituary in the New York Times (Quoted)”
Intersectionality. Social Movements. The Media. Dr. King was recorded, filmed and/or broadcasted saying the following, “We have no moral choice but to continue the struggle, not just for Black Americans, but for all Americans.” “The time is always right to do right;” “We ain’t gonna let nobody turn us around;” “We are here to say, “We are not afraid;’” “You have to create a crisis so the power structures are forced to answer;” “Justice too long delayed is justice denied.”
By now, you all know that CCDC does not close down on Martin Luther King Day. We believe strongly that it would be the wrong way to pay tribute to this great leader for a civil rights organization to close its operations when civil rights is our cause, our work, and our passion! We also believe in the intersectionality of all social movements.
Dr. King stood for and died for social justice for all. Yes, I mean ALL. Let us not honor his short life with pleasant niceties. Our country, our state, our local communities and each one of us are in crisis: The country’s time-clock is being turned backward: Some want a wall to keep people seeking asylum out (sure, they tell it another way), but the yet-to-be explained wall will keep out people who, we are told on TV are “rapists, murderers and drug dealers,” not asylum-seekers.
BORING HISTORY: After I became a quadriplegic after I was already in college, I was trying to figure out a way to make a living so I could afford the things I needed as a person with a disability who needed home healthcare. The year was 1986. The ADA had not yet passed. I had never heard of a “disability rights movement.” I was 19. I lived in South Carolina at the time. I had gone back to college in South Carolina. I did so through self-advocacy, persistence, resistance and fighting all the way. I just didn’t know that I didn’t have to go it alone. I moved to Denver, Colorado in 1990. Something called the “Americans with Disabilities Act” passed in 1990. I came to the Denver area from South Carolina to do my rehab at Craig Hospital in 1986 after my injury. I returned to South Carolina the same year. I had Medicaid. Home healthcare was a joke. Accessibility did not exist. And on and on. I came to Craig again in 1989 to deal with surgery for a skin sore and surgery on my arm to try to improve my functional skills. As a result of that second surgery, my stay was extended. I lived in the outpatient apartments and used home healthcare provided by a Denver agency. I also got to tour Denver. I was astonished that home healthcare services were fantastic. I remember being so afraid of home healthcare when I was 1500 miles from my then home. I was also amazed by the accessibility of the city. This was a year before the passage of the ADA! Then and there I decided to move to Denver. A quadriplegic who did not know anybody and did not understand anything about home healthcare services or accessibility. Other than the fact that I wasn’t getting either in South Carolina. I also did not understand very much about the power and necessity of all social justice movements. Wake up, Kevin!
HISTORY MEETS REALITY: Why? Many of you know: Atlantis/ADAPT! Their work, their struggles, their battles with discrimination, their unnecessary pain and suffering, their protests, their arrests, their political and legislative work, their MEDIA COVERAGE and their lives! That was a big part of my answer. I just didn’t know it yet. To those who have fought and died who I never met, to my friends, to my colleagues, to my clients and to those who have always believed, I fell in love with you and my lower affair continues. And I know you now.
Little by little, by dribs and drabs and by the greatest human fortune, I did learn. I didn’t know. I actually was a part of the disability community. I could do something. I was not alone.
During my undergraduate years at CU Denver, I switched my degree to political science. Law School bound. Still thinking about almighty dollar! Gotta save myself from the worries of my very expensive life. Made more expensive by going to work. After all, without all of those Medicaid dollars, the law would not let me go to work. Dumb system. There I was. Like so many: Subsidized housing. On SSDI/SSI. Medicaid only comes with SSI, right? Go to work = No Medicaid = no health insurance! Must pay for it myself: Pre-existing condition. No private health insurance = approximately $50,000 for home healthcare alone. What about all of those medical supplies? Motorized Wheelchairs? Unbelievable number of doctors’ appointments? Hospitalizations? Must lop that off the top of my salary.
So, why didn’t I know about work incentive programs for people with disabilities? It was a well-kept secret.
Clearly, I still wasn’t woke! But I just might be the luckiest person alive.
WOKE KEVIN: I met members of the disability rights community. I learned their stories. Our stories. I still wanted more school though. I still had to pay for my life.
A voracious reader. Before I read documents all day long as I do now (especially stuff by lawyers working for those who oppose us), I read for pleasure and for understanding. I began reading everything I possibly could about the Civil Rights movements, but mostly about Black Civil Rights. Took every class I could possibly take on socially equality, social injustice, social movements, social legislative change. What it means to be a human in America. Parting the Waters remains a favorite book. The series is good as well.
MARTIN LUTHER KING: And others. Dr. King had the answer. Their work, their struggles, their battles with discrimination, their unnecessary pain and suffering, their economic suppression, their educational inferiority, their voter suppression their protests, their arrests, their political and legislative work, their MEDIA COVERAGE and their lives! But the struggle had to continue. (Sounds exactly like what people with disabilities experience, except we come from a different place undoubtedly. MEDIA COVERAGE of the King movement changed the country, the world and us all. It spawned other movements, including the disability rights movement. The “change” that was “gonna come” came, right? Of course not. The other side has always been there. They seem to be back with a vengeance. We know it. We live it. We oppose it. Is it enough? Of course not. What would King say if he had kept going? Was that dream realized?
Take, for example, the need for the Black Lives Matter! Movement. Message to white people: Stop whining! “I worked very hard all my life from humble beginnings to get where I am at. Nobody gave me anything.” Really, white person (I am talking to myself because I happen to be one). Give me a break. Did a wall stop you and your ancestors from coming to this country? (In the case of Black Americans, the answer is clearly no. A slave ship did. One that was completely owned and operated, staffed, etc. by white people.) Did you devote your life to making the world understand the vestiges of slavery and the current state of denial in the face of civil rights laws protecting your rights? Did you not get a job because you were white (okay, a couple of you got lucky on this point in front of courts that were mostly white)? Were you ever hanging from a tree? How about your ancestors? How many of your friends, colleagues and family members are in prison? Do you know what the current proportion of Blacks versus whites is in our prison system? Did you ever get your head and your body cracked and beaten on your way to the police station? Did you ever have to spend many years meeting with innumerable legislators and many presidential administrations convincing the legislature that you needed civil rights protection? Did you ever “take a knee” to demonstrate against police killing people of your race?
Obviously, the list goes on. Dr. King understood. He was at the start, but he had great luck because visual media began burgeoning at the time of (perhaps because of? ) Dr. King’s movement.
This Martin Luther King Day and every day as fast as you can, get off your usual Facebook, Snapchat, Instagram, Twitter, and whatever else. Get on all media focusing on what the day is about. Or just Google or YouTube to find videos posted below this paragraph. Better yet: follow Dr. King’s advice to do something right NOW! Why are some of us still dreaming? Why are so many of us still not caring? Why are so many of us still opposing? Why is Dr. King’s dream NOT a reality 50 years after his assassination? Why are Black people still being murdered in outrageous numbers and in outrageous circumstances? Why are all of us who are not wealthy (and mostly white) not paying attention? Review video and audio below. Find more. Learn. Share it widely!
The awakening can start right now; it as easy as turning your phone away from our usual timewasting activities and do as I just did, Google or YouTube it (actual footage contains violence and language as it happened; some might find reality offensive; original videos contain captioning—may require clicking CC at bottom right of video):
March 7, 1965, “Bloody Sunday.” Edmund Pettus Bridge. Dr. King and many (mostly Black) men, women and teenagers cross bridge into Montgomery, Alabama to ensure Black Americans can vote.
April 5, 1977. Protesters with Disabilities occupy Federal Office. Section 504 of the Rehabilitation Act prohibiting discrimination against qualified individuals with disabilities by programs, services or activities receiving federal funding, but no regulations defining enforcement of the Act had been promulgated.
July 6, 2016. Philando Castille and Diamond Reynolds. Pulled over for a burned out traffic light. Shot and killed by white police officer (captured on police cam) while his girlfriend Diamond Reynolds uses Facebook video livestream to provide instant coverage of what happened inside the car. Obviously there are more.
August 11, 2017. Charlottesville, Virginia. “White Nationalists” and Black protesters clash over request to remove statute of Robert E. Lee. President Trump finds fault with “both sides.”
June 28, 2017. Protestors with disabilities
seeking to prevent loss of Medicaid Arrested at Colorado Senator Cory
Gardner’s Denver office after days of protests trespassing because “office
neighbor’s complained. Sen. Gardner later moved his office to a much less
wheelchair accessible location.
MEDIA attention on protests leads to legislation, maintaining legislation and judicial enforcement of legislation. Or does it? Keeping the dream alive requires all of it. TODAY!
So what will you do in 2019? -Kevin W. Williams, CCDC Civil Rights Legal Program Director
“This is so exhausting.” This quote is from Kelly Tobin, a CCDC member who uses a power chair and has multiple disabilities. This was her sentiment on a day when we should have been excited about participating in our government. She was feeling hurt as we all were at being excluded once again –this time from the Polis Inauguration.
CCDC had asked ahead of time and been assured of full accessibility. We were told a sign language interpreter would be there and we advertised that. We were told there would be seating for those with disabilities in need. We reached almost a month ago and offered help. We shared specific things to think about to make this inclusive of our community. Our offer to help with accessibility was rebuffed and we were promised accessibility was handled. I guess we were wrong to believe this representation from their staff.
I had been to other inaugurations, Hickenlooper, Ritter, and Owens. All of those ceremonies were accessible in that people could show up and listen. Wheelchair users could see and those with other mobility impairments got seating up close and could get around the area. Today there were tents, barriers, and cops keeping public members out. We were blocked as we entered the Capitol area from the Colfax side. We were told there was a public space down the hill on Lincoln Street –we asked about ADA seating and the guard said he knew nothing about it. One of our members who has a service dog, wanted to get her dog inside before the cannons went off. She is very limited in her ability to walk distances safely. The cops refused to let her in the door of the capitol that was close to us, nor could she walk around the short way but would have to walk all the way around the building. They said she had to go through security, she was wearing an ID badge and they could have walked her across the cafeteria and had her go through security…but no.
We went down to the “public” area. If there was an ADA section we could not see it. There were barriers on the street so we could not get off of the sidewalk if we wanted to. We looked at the big screen and saw neither a sign language interpreter nor captioning. If there was an interpreter it was hidden.
Over the West Steps of the Capitol were large banners that said Colorado for All….I guess that meant Colorado for All except for people with disabilities.
The disability community had sent Governor Elect Polis a letter on 12/13 and asked for a response and an introduction to the new Boards and Commission person before the inauguration. Is this a sign that asking nicely is not going to work with this Governor? Good thing we have a strong ADAPT chapter.
It is always disappointing to be excluded but it is especially gut wrenching when the exclusion is created by someone who screams from the rooftops that they are invested in a Colorado for All. Is this really for all of us…or just for some? If this is Colorado for all, then it is important that Governor Polis acknowledges our community.
While the Opioid crisis is a serious problem, some of the policies have gone too far and have caused people with serious pain to lose access to needed medications and even to their physicians. There are legitimate uses for pain medication. A group of pain patients and their supporters will be holding a rally to implore legislators to be more thoughtful and to clarify the existing laws and regulations. Colorado Law actually was supposed to exempt chronic pain patients from rigid limits. There are ways to manage pain medication to mitigate abuse of such medications. Forcing everyone to taper off of these medications is not the answer.
Please plan to attend this rally on JANUARY 29TH 2019 at 10:30 am at the Capitol. A flyer is attached,
CCDC’s Civil Rights Legal Program Director, Kevin Williams, was featured on KDVR’s Monday night broadcast in remembrance of President George H.W. Bush.
“President Bush said himself the greatest thing he did during the course of his presidency was to sign the Americans with Disabilities Act,” Kevin said during the interview.
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