Text of the letter sent to the Federal leaders
As a frequent traveler who uses a power wheelchair I have a different perspective of luck…
On Monday I was in Grand Junction for work with our amazing Rocky Mountain Health Plans Member Advisory Group –Tuesday morning I met with a couple of our CCDC members and was ready for my bus ride home—destined to leave around 1:20 pm. The plan was to get home at reasonable hour as I had to leave early today (Wednesday) to go to Charleston South Carolina for Legal Services Corporation meetings.
I was SO excited because Greyhound finally printed tickets that have a little wheelchair on them when one indicates that they will be traveling with a wheelchair. It took years for busses to be accessible at all, then it was even more years for them allow us cripples to buy tickets on line like everyone else. Until now the tickets would not print in a way that showed wheelchair access was needed. Leaving Denver is never a problem but every time I was to leave Grand Junction I had the same problem—the guy at the station would always tell me I “did it wrong” in terms of buying the ticket, tell me that I may or may not be able to get on the bus—that I would have to see if they had room. This was always a huge stress. When he would “allow” me on the bus it was always the local which stops four times, never the express for which I had bought a ticket.
So—I was thrilled to have an express ticket with a little wheelchair picture –he could not deny me now!!! As I was getting ready to head over I noticed a new feature on the Greyhound website called “track my bus”. I decided to check it out—just for fun. My excitement ended when I saw the bus was 4 hours late.
I remembered there was the local route, the one I am usually forced to ride. I go to the station (after a stop at my favorite candy store—they have a great licorice selection) and ask if I can get on the local. I acknowledge my ticket is for the express and show him the ticket with the wheelchair—to my surprise he is nicer (maybe the letter from our legal program had something to do with it). He says “if the lift works” I can get on the bus that will be on time—that will get me back to Denver at 6:30 instead of 5:40 but well before 11 pm which is when my scheduled bus will arrive.
I bite my tongue and do not say that the lift better be working and that they are supposed to check them regularly whether or not they have a passenger reserved ..and soon he tells me yes, I can get on this bus. I get on and am pleasantly surprised by a wonderful driver who actually tells me that there is a rest stop in Vail and asks me if I will want to get out!!! WOW—that almost never happens. Wheelchair users are not supposed to need to use a bathroom or eat while traveling. I actually do not need to get out but really appreciate the offer. Then to make it even better he takes control of the bus and requires people to be quiet so I can get work done and do not have to listen to other people’s music, children, or cell phone related drama.
Can it get any better????
We cruise along—pick up people in Glenwood, Vail, Frisco, watch a great sunset, mountain scenery, and life is good. Then we get to Georgetown and the bus sputters out. After a few futile tries to get it going again the driver announces that we are having mechanical problems. Immediately some grumbling….”you are not getting my business again” says someone from the back. Really—I think—how many of us who travel Greyhound have a ton of other options? I keep my mouth shut.
The driver tries to tell us that it will take some time but people decide that a bus should arrive in one hour—I knew that was not going to happen and tried to say so. People stay relatively calm—I wonder if they will be able to use the lift to get me out. The driver has to argue with Greyhound management somewhere to send a rescue bus. After several phone calls he succeeds or so we think.
Greyhound does not send a rescue bus –but instead sends a mechanic who is tasked with trying to fix a bus, in the dark, in the rain, on a highway. Yeah—right. As we get to two hours people begin freaking out. It is not too cold but not warm either—one definitely needs a coat on inside the bus and it gets colder with people going in and out for smoke breaks. Several people start complaining loudly—and a couple start talking about how horrible this is and that “there are two handicapped people on the bus” and it is “negligent” that we are left without heat. I guess I am one of the two –another guy is an amputee who has a manual wheelchair stored below the bus (his choice—there is room for two chairs). I am about to protest but think better of it. I figured that they would not send a new bus but instead have the bus that was four hours later stop and get us—and I knew that bus would be full —so realized maybe a mood on the bus of concern for us would be in our best interest. If they are so concerned that they have to scream about it then they could not possibly justify the replacement bus refusing to allow us on—right?
Keeping my mouth shut in these situations is not a strong point and I am mildly impressed with my restraint. People were resigned to missing their connections—but there were busses leaving at midnight they could catch. A couple poor souls had flights to catch that they were not going to make. I felt badly for them. As people got more worked up—the mechanic worked in futility outside. Our driver was terrific, he remained calm. We all realized it was not his fault. However the complaining continued and people started getting each other escalated. Eventually someone decided they were going to call the police. They did –the cops asked what he wanted them to do—he said he wanted them to bring us a space heater for the bus….right then another bus pulled up. I was correct and it was that other bus that was four hours late. That driver was NOT in a good mood.
Everyone except my fellow cripple, a couple guys and I get on the other bus. One person comes back to tell us the bus is really crowded. I worry…and wonder out loud if I will get on the bus. “They have to let you on—they can’t just leave you” says the able bodied guy who was waiting. I did not respond but thought of a colleague who was left for almost 24 hours in a rural mountain town while several busses went by and claimed to not have room—despite his prepaid ticket. The nice driver finally came to me and said quietly—lets get you off this bus and I will make it work. We get me off—and I wait outside while he goes in and talks to the second driver—they are in there a long time—and finally he comes out with a smile—VICTORY. I get on the bus and we are in business—several hours later but in business. While others are pleased to finally be on a moving bus I am ecstatic.
I guess this means we have not in fact arrived—as a disability rights advocate it should be that exciting that I was not left on a mountain road or on a broken bus. However I am still pleased that the other passengers were at least concerned and not arguing for us to be left or forming a little angry anti cripple mob—something that has happened in the past and that feels awful. So—maybe we have made some progress—others understood we had a right to be on the bus!
In fact, we have made a lot of progress. It was not too long ago when not every bus had a lift and when it would have been impossible for both busses to have a lift at all. In those days there was a strict 48 hour advance notice even for emergencies. People, including me, were regularly stranded in all sorts of places. The bottom line is that stuff happens when one travels. For people with disabilities when all we have to deal with is the “stuff” that happens to everyone it is a wonderful day! The two “handicapped” people on the bus were the two that had the easiest time managing the disruption because to us inclusion—even inclusion in disruption—was wonderful. The ADA does not guarantee us that things will always work—it does not guarantee us jobs, happiness or anything other than a level playing field to have the same experiences as everyone else. When that happen’s it still feels like a stroke of luck.
April 10, 2020
The Chanda Plan Foundation was created when founder, Chanda Hinton’s life was saved by integrative therapies. On her deathbed, at a scant 59 lbs. she was desperate to try anything. Through integrative therapies, Chanda regained her health and felt more alive than she ever had since that life-changing day when she became a quadriplegic. Why in 10 years had integrative therapies not been recommended? Why wasn’t anybody talking about the benefits?
These questions and Chanda’s life-saving outcome fueled the start of the foundation and the mission of improving the quality of life for persons with physical disabilities through direct services and systemic change to access integrative therapies. Listen to Chanda explain the ground-breaking work they are doing!
The Chanda Center for Health: A look at integrated Healthcare
April 23, 2020
Webinar Panelists: Matthew Wynia, MD, MPH Director, Center for Bioethics and Humanities, Julie Reiskin, LCSW, Executive Director, Colorado Cross-Disability Coalition, Govind Persad, JD, PhD, University of Denver, Sturm College of Law. Moderator: Daniel Goldberg, JD, PhD, Center for Bioethics and Humanities.
This event was made possible by the CU Center for Bioethics and Humanities Holocaust Genocide and Bioethics Program which is funded by the William S. Silvers, MD Endowment Fund, the Rose Community Foundation, and JEWISHcolorado.
Crisis Triage and People with Disabilities: Historical Lessons for a Time of Covid
April 4, 2020
Kristen Castor grew up with a disability, and she will tell you if she wasn’t able to do absolutely everything by herself without assistance, she wasn’t going to get anywhere. Well, Kristen has gone many places – from being bussed to a “flat” school, graduating high school, attending college, travel in Europe, and then joining the peace corps, her life experiences are truly amazing. Listen to Kristen share the birth of the civil rights movement in Colorado from someone who was there.
Disability Power in Colorado since 1975 with Kristen Castor
Link to HCPF Colorado’s LTSS Assessment and Support Plan
April 17, 2020
Learn from Susan Niner, former Deputy Director at the Colorado Division of Housing while she discusses low-income housing options, the impact COVID-19 on housing options, as well as reasonable accommodations.
Housing Webinar with Susan Niner
Listen to Brenda Mosby’s talk about her journey through Vocational Rehabilitation as she went from an unemployed newly blind individual to her Master’s degree as a vocational rehab counselor – all through the local DVR. Learn how you can benefit too.
How to Get the Most Out of DVR Part 1
How to Get the Most Out of DVR Part 2
Join Louise Vaughn, Director of HR for Arc Thrift, talk about interviewing and people with disabilities: what are the parts of an interview, how do you handle needing to ask for an accommodation, how do you interview people with disabilities, and so much more. The Arc employs more than 350 people with disabilities – come and learn from the expert.
Interview Tools for People with Disabilities
CCDC Probate Lawyer, Chris Brock talks about the critical documents you need to ensure your medical choices are adhered to. He explains what they are, which are important, and how you can put them in place.
Wills and Advanced Directives
Denver artist Raverro Stinnett was at Union Station after attending a LoDo art opening, waiting for a train home early on the morning of April 20, 2018, when he was confronted by four security officers who threatened him and challenged him to a fight. Two of the guards, employed by contractor Allied Universal Security Services, led him to a bathroom and brutally assaulted him while another kept watch; all three later pleaded guilty to criminal charges. Stinnett was left with permanent brain injuries that, according to a lawsuit filed last week, “have completely upended his life.”
The City is planning a sweep of all the encampments from 20th to 23rd, from Welton to Curtis – there are about 300 people without housing living at these encampments. We are in a State of Emergency with a deadly pandemic spreading across our nation… And THIS is how our Mayor treats people living on our streets who can’t afford his mile-high rent.
The Mayor’s Office LIED: On March 24th the Mayor’s office replied to an email stating it was “correct” that the city “would not be displacing people or their property” during this state of emergency. We are still in a state of emergency with a pandemic spreading across our City. The Mayor’s office lied straight out. How are people on the streets supposed to trust our government when they are lied to like this?
You Can’t “Stay at Home” when Your Tent is Being Swept: The sweep is scheduled for April 30th. The stay-at-home order has just been extended to May 8th. How are people living in tents at these encampments supposed to “stay at home” when the closest thing they have to a home, their tent, is being evicted from public space with nowhere to go?
CDC guidance says Sweeps should NOT take place UNLESS INDIVIDUAL HOUSING is AVAILABLE for all at the encampment: The CDC guidance clearly states the following,
“Unless individual housing units are available, do not clear encampments during community spread of COVID-19. Clearing encampments can cause people to disperse throughout the community and break connections with service providers. This increases the potential for infectious disease spread.” https://www.cdc.gov/
Where are the 300 housing units for residents of these encampments???
As of yesterday, there were 95 tents in the area planned to be swept. There are between 1 and 5 people staying in each tent, meaning there are about 300 people living outside in this area. In order to follow CDC guidance, stay-at-home orders, and care about human beings, individual housing (i.e. vacant apartments or hotel rooms) must be provided to every person in these encampments before they can be swept. Either housing needs to be given for all 300 people or the sweep needs to be called off.
Action Items
► Sample letters for both the Mayor and the City Council are on our website. Use this link.
Dear Governor Polis,
We have an emergency situation in Denver. People experiencing homelessness are camped near downtown Denver in part because they feel it is safer than living in a shelter with hundreds of others. For months, Mayor Hancock has refused to provide them with bathrooms or hand-washing facilities. This week, Denver Homeless Out Loud and Mutual Aid Denver came up with funding and placed four portable toilets and hand-washing stations near these encampments. On Wednesday, April 22nd, 2020, this same area was posted for a sizeable multi-block Sweep to take place on Thursday, April 30th, 2020. The Sweep could affect as many as 300 people.
The CDC guidance clearly states the following, “Unless individual housing units are available, do not clear encampments during community spread of COVID-19. Clearing encampments can cause people to disperse throughout the community and break connections with service providers. This action increases the potential for infectious disease spread.” (https://www.cdc.gov/coronavirus/2019-ncov/community/homeless-shelters/unsheltered-homelessness.html ) The planned Sweep directly violates CDC guidance to cities, and it will separate these neighbors from the toilets and hand-washing stations, which provide a minimum amount of safety for them.
We have heard nothing about the City providing an apartment or hotel/motel room to each of the people affected by the Sweep. According to CDC guidance, providing rooms must be done for our neighbors living on our streets so they, too, can shelter at home. Please use your influence or emergency regulatory authority to prevent this Sweep and any others in Denver or across the State until the pandemic is over unless individual housing – hotel/motel/apartments – is provided to the people surviving on the street before the Sweep. You must issue an Executive Order from the Governor’s Office prohibiting Sweeps until this pandemic is declared over.
Thank you for acting to stop the imminent Sweep in Denver and those of other homeless encampments across Colorado.
You may contact Terese Howard, DHOL, at (415) 517-5603 or terese.act@gmail.com.
Dear Council Members,
The City is planning a sweep of all the encampments from 20th to 23rd, from Welton to Curtis, where approximately 300 people without housing live. On March 24th, the Mayor’s office replied to an email stating it was “correct that the city would not be displacing people or their property during this State of emergency.” We are still in a state of emergency with a pandemic spreading across our City. It appears the Mayor’s office lied straight out.
When the government lies like this, how are people on the streets supposed to trust their leaders?
The scheduled Sweep is for April 30th. The stay-at-home order has just been extended to May 8th. How are people living in tents at these encampments supposed to “stay at home” when the closest thing they have to a home, their tent, is being evicted from public space with nowhere to go?
The CDC guidance clearly states the following, ‘Unless individual housing units are available, do not clear encampments during community spread of COVID-19. Clearing encampments can cause people to disperse throughout the community and break connections with service providers. This increases the potential for infectious disease Spread.” (https://www.cdc.gov/coronavirus/2019-ncov/community/homeless-Shelters/unsheltered-homelessness.html)
So our question is this: Where are the individual housing units available for the 300 people living at these encampments?
As of yesterday, the Sweep area has 95 tents with between 1 and 5 people staying in each tent. This means there are about 300 people currently living in this area. To follow CDC guidance, stay-at-home orders, and care about human beings, we must provide private housing (i.e., vacant apartments or hotel rooms) to every person in these encampments. Either find housing accommodations for all 300 people or call off the Sweep.
To make housing available for those in the affected area, we need to get on the ball right away. We must identify the units, ensure the appropriateness of each person’s particular needs, and help transport their property to their new house.
In case you did not see our recent quick survey of 64 people who are homeless, found that 87% would choose a hotel room as a first option. Tent camping was the second-best option, and shelter was last. Residents of these encampments want housing!
Please help us ensure no Sweep occurs unless and until appropriate individual housing is available for all 300 people at these encampments. Contact the Mayor’s office and ask where the 300 housing units are for these residents.
Inform the Mayor’s office you do not support a Sweep of these residents unless the can offer real housing for all. If there are not 300 housing units ready for folks to move in, the Mayor must call off the Sweep immediately.
Sincerely,
English/Español
This deadline has passed. If you didn’t file for your dependant children, the stimulus amount of $500 will be available after you file your 2020 taxes.
From IRS.gov: “The IRS has already scheduled payments to taxpayers based on Social Security retirement, disability (SSDI), or survivor benefits, Railroad Retirement benefits. Supplemental Security Income (SSI) and Veterans Affairs (C&P) benefit payments will be scheduled shortly for payment in mid-May. However, the window has closed to use this tool for these recipients who have a child and don’t normally file a tax return. These recipients who do not receive a payment that includes up to $500 for any qualifying children can file a tax return next year to determine their payment based on 2020 and claim any additional amount they weren’t paid this year.”
We have also received multiple questions about dependant children over the age of 17 and parents claimed as dependents on their adult child’s taxes.
If you have questions about your stimulus payment, check one of these pages for information:
We were just informed there is a deadline of tomorrow (Wednesday) at 10 am MST for anyone on specific benefit programs AND who also have dependent children.
Social Security recipients have until noon on Wednesday to file taxes or fill out this non-filer form: Non-Filers: Enter Payment Information. This unexpected deadline is a huge burden on parents with disabilities who are on SSDI and other Social Security recipients, including survivor beneficiaries such as windows and widowers with young children and retirement beneficiaries such as grandparents raising adopted children under the age of 17. The IRS Press Release explains another deadline is coming shortly for parents who receive SSI or VA benefits.
From Julie Reiskin, Executive Director
For Colorado to actually implement the most critical areas of flexibility requested, meet the needs of the Medicaid providers that include rural hospitals, personal care workers, people that provide direct support to those with cognitive disabilities, and other essential needs the FMAP needs to be at least 12%. Therefore, we need our federally elected officials to actively fight for an increased FMAP in the next stimulus package currently in the work. It must be at least 12%. At the very least we need money that goes to the states to help with Medicaid costs.
This is NOT a partisan issue. Medicaid Helps ALL of Colorado. This could be a life and death issue for elderly and disabled Coloradans but will also affect many others including everyone who has either lost their job or has reduced hours.
Everyone should contact BOTH Senators and the Representative for YOUR area. You should say that you want the package to include 12% FMAP or any other way to get money to state governments and why you care about Medicaid. Include that you are a voter, and know and speak to many other voters!! Share this request with others.
CCDC’s own Kristen Castor was interviewed as part of the following news report. Follow the link to read the entire article. Kristen’s section is below
Kristen Castor
Non-attorney advocate with the Colorado Cross-Disability Coalition, based in Pueblo
On Her Work With The Organization
My primary responsibility is to represent people who are appealing Medicaid denials at the administrative law judge level with the state. And then I do a lot of miscellaneous organizing things. Right now there’s a lot, because we’re trying to get our own membership informed about the virus, the precautions they can take and the benefits that they have.
Interestingly enough, most of the people with disabilities that we serve live below the poverty level. So, anything that deals with poverty often crosses over with what we need to look at for our population.
On Supports And Challenges Due To COVID-19
I’ve been so worried about people being stuck in their homes and not able to get food. That just terrifies me. I think people with severe disabilities or possibly very elderly people are at high risk of that happening. And so far, the city [of Pueblo] has just responded by creating more networks and trying to help that particular population.
[We’ve been discussing] the fear that if you need medical help outside of your disability, that you will be triaged, and basically murdered. That’s the fear we live with that constantly. And the reason is because all of us, if we have a severe disability and lived with it for a number of years, all of us have been told to our faces by various people that we should not be alive. I’ve been told that.
We’ve been fighting for the right to live in the community for the last 40 years. So every time we go around with a threat like this, we’re thinking, ‘Oh my god, I fought all my life to stay independent, and now I might lose it with a pen stroke.’ And people with disabilities, we’re just that–we’re people. It doesn’t mean we can’t contribute.