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Tag: society expectations

Restaurant Review from CCDC

 

You will not find restaurant reviews on the CCDC blog often, and almost never by me, but today is different.  CCDC took the members of our legislative team who were available to lunch today at Pizzability at 250 Steele Street to thank them for their many hours of tireless work this session.  They were an admirable team and deserved more than lunch.  However, lunch and our undying gratitude are what we can provide.  Our amazing community organizer Dawn Howard chose the location.

Like most restaurants in Cherry Creek North, it is physically small.  Unlike any other restaurant in that area where I have eaten, I did not feel in the way—even when I was objectively in the way.  In any space, when a bunch of us come in at the busy hour we can be..well…in the way.  It only takes a couple of wheelchairs, never mind some canes, walkers, dogs, and general klutziness to make us seem like we are taking over.   When we are doing an action that is exactly what we want, but when we go to eat out, whether individually or in a small group we do not want to feel as if our mere presence is an inconvenience.   So today we show up and our presence overwhelms the place both physically and logistically.  Yet we are greeted with warmth and genuine pleasure that we are there.   When I was objectively in the way blocking an aisle no one bumped into me, no one asked me to move, no one gave me “the look”.  No employee rushed to serve me quickly for the purpose of getting me out of the way.

Most of our crew had ordered but there were three of us left when I arrived.  The bill for three lunches in Cherry Creek North came to $16.   The food was good.  Most significant for me is that they had Gelato—I saw that and forgot about pizza.  The slices that my colleagues ate looked terrific.  They were big, and hot and had many varieties. Salads were an option also and non-alcoholic drinks appeared to be free with the pizza.  They had some alcohol for sale as well…soon they will have pairing suggestions.

As you might guess by the name, this is a restaurant that sells mostly pizza and most of the employees are people with disabilities, particularly people who appeared to have intellectual and developmental disabilities.  Most of the customers eating there today appeared to have disabilities as well.

My personal food tastes are more in line with other places in Cherry Creek North.  Earlier this week I had an hour in between meetings in that part of town and went somewhere else.  The food I like (and admit it is kind of ridiculous food) is more like an overpriced salad with things like goat cheese, grapes, and cranberries.  I had that with unsweetened tea (trying to be good diet wise) and while the food was delicious, and there was much more physical space in this place than at Pizzability, I felt completely in the way the entire time I was there.   It was uncomfortable.  While no one was rude or even unkind it was my presence was made people uncomfortable.   I had to ask several people to move to get to a space to eat.  I actually considered getting it to go even though it was raining and cold that day.  I am sure the people in this restaurant (staff and customers) would have been relieved had I just taken the food to go.  Today, when some of choose to sit outside at the tables (it was probably 60 degrees and felt lovely) they asked repeatedly if we were sure we were comfortable and offered to move things around if we preferred to be inside.  The offer was made in a manner that showed respect and that they valued our business.

There were other cool features.  The menus are paper and you circle what you wanted and write your name.  Accessible for Deaf folks and people that do not speak English, do not read, etc.  Some work would be required to make it accessible for blind folks (there is a menu online).  There was a “sensory corner” with various objects.  Each plate was different and they were painted by artists from the Access Gallery (an art gallery for disabled artists).

There did appear to be someone without a visible disability running things and the way she talked there was a training component for employees.  (I learned later on their facebook page that this is indeed a training program)The employees were working hard and seemed happy, and the work is real work that valued employees do in restaurants every day.  If part of the goal is to train workers for “integrated” jobs, I am sure that will work.  However, some employees may want to stay and be around others with disabilities.   Maybe some will become supervisors or trainers.  Maybe some will prefer to keep doing the great job they are doing today.

Is this segregated?  Maybe?  Not sure that it matters because it is a choice. Doing a good job and being paid for work, and continuing to learn and improve at one’s job is what adults do in our society.  Other groups have businesses that are primarily run by and serve specific communities.  They do not eschew customers from outside groups but they cater to their own communities.  This is how disenfranchized communities build economic power.  There are “pink pages” advertising gay-owned businesses.  There are Latinx and Black Chambers.  Why not promote and support more disability-run/disability positive businesses?  Non-disabled people can work and eat there but the atmosphere and culture stay disability positive.  Just like as a white person I can go to eatery owned, staffed, and patronized mostly by people of color.  I am welcome to show up but not to inappropriately take over the culture of the place (as white people often want to do).   Communities of color started and continue these businesses because there is an economic and cultural need for spaces that do not have to bend to the dominant culture.   That is cultural pride, not involuntary segregation.  We need to start understanding the difference.

We need businesses like this in our community..that is by and for our people.  Where non-disabled allies are welcomed but where our disability culture and our vibe will stay the dominant feeling.   We need to stop defining success by how much we interact with people who do not have disabilities.

I know that I preferred eating lunch in a disability positive environment, among not only my peers/colleagues with disabilities but among other customers and employees with disabilities.   I would rather eat in a place where I feel comfortable and welcome than in a place where I am obviously in the way.  The next time I happen to have an hour in between meetings in Cherry Creek North, Pizzability will get my business!  I encourage you all to do the same.  I am sure they will also welcome those of you without disabilities too.

Help CCDC with our 2020 Strategic Plan

The CCDC Board of Directors is writing/updating our strategic plan.  This is the first of several surveys we will have to get members input.  If you get this survey via an email from CCDC then you are a member.   https://www.surveymonkey.com/r/5J5PLQW

If you get this survey from another source then you are NOT listed as a member and should join as a member.  It is free and you can choose what topics, if any, about which we will contact you.   You can join at www.ccdconline.org

Your feedback is important.  This survey is about our organizational values.   Our current plan summary is attached.   stratplansummary

The next survey will be about our VISION.

Thank you for your time.

Congratulations to Jared Polis and Other Winners

CCDC wishes congratulations to our new Governor Jared Polis and looks forward to working with this new administration.   Our expectations of a new governor are clear and doable.   We look forward to advancing the rights of people with disabilities so that we can show our capabilities as full citizens.  This means a dramatic increase in the number of people with disabilities who are employed.  This means a dramatic improvement in the high school graduation of students with disabilities and making sure that students go to college or some sort of vocational program.   This means a government that values people with disabilities by having high expectations and providing appropriate supports.   This means a government that involves us at every level…on boards, commissions, as employees in state agencies, and on the transition team.    Governor-Elect Polis stated last night that his administration will be inclusive.   We expect to be part of this inclusion and to have disability representation in historic proportions and stand ready to help make that happen.

CCDC congratulates all of the representatives and senators that won their seats as well and we look forward to working with all of you on these same goals.

We will be solidifying legislative priorities for the next two years soon but among them will surely be:

1) Increasing protection for renters such as statewide source of income discrimination protection and habitability laws.

2) Extending the Mediciad Buy-In for Working Adults with Disabilities to people over the age of 65 and for more than 10 days in between jobs, even if we have to use state funds.   With the federal government giving the states carte blanche we should be able to get approval.

3) Getting safety protections for people living in host homes.

4) Consumer direction for all HCBS services.

5) Improving our case management systems, especially transition from institutions.

We will be focusing on money for solid transportation that has a focus on transit and affordable housing that is inclusive of everyone including those with very low income.   We will be working on increased accountability around behavioral health and overall health care in the Medicaid program.

On a federal level with the Democrats having a majority in the house, we will be holding Congresswoman DeGette accountable for her promises to us to fix the Electronic Visit Verification mess and exempt consumer direction and family caregivers.   We will also expect help with improved access to quality complex rehab equipment (power wheelchairs) including accountability for repairs.

While Colorado definitely went blue, this does not mean that CCDC will stop working with our Republican allies.   We have always been and always will be a bipartisan organization.  Our issues cross both parties.  Disability does not discriminate.

CCDC was very proud of the VERY STRONG voter turnout in the disability community.   Approximately 90% of our members had already voted before Monday and we are sure the rest voted Monday or Tuesday.     Voting is the first step of realizing NOTHING ABOUT US WITHOUT US.

CCDC in the News: Denver dad of 8-year-old he calls ‘a danger to the community’ getting help from health care company Father: ‘Beacon is changing its tune.’

Channel 7 News cover story about CCDC helping once again: Julie Reiskin, CCDC Executive Director, quoted. 

How do we solve a problem like Case Management?

Despite a plethora of resources dedicated to case management, there is no true single case management system for those with high needs. There are fragments in some systems for some issues but they do not address holistic needs. There are case management systems that are really gatekeepers for government programs. Gatekeeping has its place but it is different than case management. Despite the many areas where case management is covered (even just in the Medicaid system) there has never been a process whereby the stakeholders and government get together to at least have dialogue, if not answer the following questions:

1) Who needs what level of care management across systems? What percent are likely permanent needs?

2) What are the specific tasks needed and how much time will this take on average?

3) What are the qualifications to do these tasks?

4) What are the quality measures to assess the performance of these tasks?

5) What is the cost to perform these tasks including maximum caseload size.

6) What are the total resources now dedicated to all case management?

7) What case management are we doing now that is not useful, not necessary, or could be done at a lower level?

8) How do we create a plan to take our current system and transform to a system that provides intensive case management where appropriate and reduces services where there is no benefit?

Case management is needed in the following situations:
*People with a serious but temporary medical condition or new illness, such as cancer for help accessing and coordinating medical and other resources.

*People with long-term disabilities who are unable to do their own case management and who have no family able to assist. This must be comprehensive and include non-medical issues even the mundane daily life activities that can overwhelm some people. Even dealing with a utility company or a landlord can require assistance for people with some disabilities.
Some individuals could learn to do more of their own management with teaching (or have a family member able to take over with some training) and others will need this high level over a lifetime.
This is not a huge number of people, but the lack of case management causes them to spend a lot of time in crisis and use emergency resources from multiple organizations. Case management of this type is labor intensive and requires a very low caseload and high level of training.

HAPPY ADA DAY to all of you!

28 years ago today the ADA was signed into law….and we have seen changes that only dreamed at one point.  When the ADA was passed into law Estrella Rowe, the daughter of Lucinda Rowe, was not even born.   Please enjoy this guest blog written in honor of the anniversary by the parent of someone who continues to benefit from this incredible law that we must still protect.
CCDC is happy that a new generation of leaders, like Lucinda Rowe, are involved.   Lucinda took our advocacy class, got involved as a volunteer and is now a temporary employee.   Thank you, Lucinda, for writing this guest blog!  We welcome others to submit pieces for this Sound Off Blog.

Happy Independence Day !!


ADA Day

Written by Lucinda Rowe
July 26, 2018

ADA Day is significant to my family but most of all to my daughter. Estrella was born prematurely weighing one pound. She was diagnosed with severe Cerebral Palsy at a month old. Continue reading “HAPPY ADA DAY to all of you!”


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